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Health Directory > Diseases And Conditions > Genetic Disorders > Organizations
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Lysosomal Diseases New Zealand
Information, support and advocacy for families affected by Lysosomal Storage Diseases, a group of rare genetic diseases.
http://www.ldnz.org.nz
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Hereditary Hemorrhagic Telangiectasia Foundation International,
Provides patients, families, and doctors with educational information and fosters an exchange of information about the diagnosis and treatment of HHT between patients, physicians, researchers, genetic counselors, agencies, educators, and the general publi
http://www.hht.org/
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Australian MPS & Related Diseases Society
Informs and support those affected, directly or indirectly by an mucopolysaccharide or related disease. Offers information regarding each disease, a discussion forum, a picture gallery and news of events.
http://www.mpssociety.org.au
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Lowe Syndrome Association
Information about this disease and the international organization that deals with it.
http://www.lowesyndrome.org
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